A year ago at this time our family gathered for our Christmas celebration. Normally a happy and joyous time it would be cut short and the mood turned somber as we eventually made our way to the hospital to be with our precious little Amber. Her courageous struggle would finally come to a conclusion with her family members present to bid her farewell. It was not what we wanted at this time but not unexpected. I had written a post called, Amber’s Journey, back in March of 2009 when we learned she would become a permanent part of our family. Her health had always been precarious, but like most parents and grandparents we hoped for the best and always looked forward to the future. On January 5, 2010 we celebrated her life and then prepared to move forward with our lives. It was and still is difficult at times.
Amber will always be a part of our life and we will remember her this weekend as our family again gathers for our Christmas celebration. We will remember how she taught us what unconditional love is all about. Amber gave us an opportunity to teach our children and grandchildren to accept others who may be ‘different’. Amber reinforced our belief that we must all be advocates for those who cannot speak for themselves. It is incredible the number of lives she touched. We often hear the bad news about children who slip through the cracks but this was not the case with Amber. We are grateful and remember the strong advocacy of the public servants in our community who worked tirelessly on her behalf. We will remember the exceptional group of young adults who supported my daughter and her husband.
We will remember her incredible ability to survive. We will remember her moods, her desire to be cuddled, and the way she communicated. We will remember her smile, her rosy cheeks, and her beautiful long hair.
We will remember how blessed we were to know her and how much we loved her.
The title of this post is inspired by this performance by Raul Malo and Michael Guerra.
Peace and solidarity,